Canberra Endometriosis Centre

The Canberra Endometriosis Centre is a multidisciplinary network of health professionals that work in partnership with women and teenagers with endometriosis and their families. The centre provides ongoing support through diagnosis, treatment and long term management of endometriosis.

The Canberra Endometriosis Centre is actively involved in research with focus areas, including period pain, menstrual disturbance and early diagnosis of endometriosis in teenagers; innovative long term self management of endometriosis and pelvic pain; and the long term impact of endometriosis on women's lives.

Latest News

Endometriosis Awareness Month - March 2017

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The PIPPA Project (incorporating the MDOT Study 2016 and PIPPA validation)

This study is testing a 10 question checklist (PIPPA) that will help identify young women with problematic period pain and symptoms.

We have had a phenomenal response from participating colleges and 1066 questionnaires have been collected from 15-19 year old women and data analysis is in progress. Thanks so much to all the young women who participated and the participating colleges: Narrabundah College, Canberra College and Gungahlin College – you’re awesome!!!

Two research abstracts relating to the PIPPA Project have been accepted for presentation at the World Congress on Endometriosis to be held in Vancouver, Canada 17 - 20th May 2017.

Research on sex and wellbeing in male partners of women with endometriosis

Jane Keany is investigating the sexual impact on male partners whose female partners experience painful intercourse due to endometriosis. Jane would like to interview male partners currently in a relationship with a woman with endometriosis and pain during intercourse.

Jane is a Master of Philosophy student at Western Sydney Sexual Health (University of Sydney).

Please see the research flyer for more details

Impact of Endometriosis on Women's Lives - research project by ANU PhD Candidate

January 2015: Maryam Moradi has been awarded her PhD (Doctor of Philosopy) through our research on the Impact of endometriosis on women's lives and development of the EIQ (Endometriosis Impact Questionnaire) – a validated tool to measure the long term impacts of endometriosis
Congratulations Maryam and thanks to all the women who participated in the focus groups your voices have been heard and "highly accessed" - read them for free online where they have been published:

February 2017 Thanks also to the women who helped with EIQ development and testing and those who completed the EIQ online (approx 1,000 women in Australia [70%] and worldwide [30%]). Publication of the EIQ validation has been submitted and publication of the EIQ data from 1,000 women will be published next.

Yoga for women with endometriosis and pelvic pain

Next Yoga session (single session only) Saturday, March 4, 2017, 9.30-11.30am. Cost $10. (See PDF for more info)

If interested in the Yoga group, contact Martha by email: martha@grapevine.com.au

Canberra Endometriosis (and Pelvic Pain) Network

Life with Endometriosis Photography project

This was launched at the Impact of Endometriosis Night held on 26th August 2014 at the Legislative Assembly and is still ongoing. Margaret is currently preparing an audiovisual presentation that is planned for presentation at the Opening Ceremony of the 13th World Congress on Endometriosis in Vancouver, Canada 17-20 May , 2017. Thanks to all participating women in the Life with Endometriosis project and Margaret’s creativity!! Your stories will be shown to the world (and a lot of health professionals) through photography.

Life with Endometriosis photography project by local photographer Margaret Kalms

Females on Form Cabaret Show on International Women’s Day - Wednesday 8th March

Fundraising event for local charities. See the attached flyer for details.

Past events

Blue Illusion Fundraiser for the Canberra Endometriosis Centre and Support Network

A great afternoon was had at Blue Illusion (Belconnen Mall) in March 2014 as part of Endometriosis Awareness Month. The lastest fashions were modelled and money was raised for the Canberra Endometriosis Centre and Support Network.

Pelvic Pain and Endometriosis Information Night

On Wednesday the 30th of May, 2012, two Pelvic Pain and Endometriosis Information sessions were held at The Canberra Hospital Auditorium. The sessions were attended by 230 people.

The guest speaker was Dr Susan Evans who spoke about managing pelvic pain and endometriosis. Susan is the author of the book - "Endometriosis and Pelvic Pain". Copies are available from the Endometriosis Centre or online from Dr Evans' website.

Local photographer Margaret Kalms, who has a genuine focus on women's health issues, also attended the Information Night and displayed some of her beautiful photos.

Illuminating Endometriosis – Endometriosis Awareness Month

Was held on the 19th March 2016 and was an information day focused on collaboration, empowerment and networking. A range of guest speakers covered topics including women’s and GP (General Practitioner) perspectives, pain with sex and challenges for intimacy,the bigger picture of pelvic pain (by Dr Susan Evans), the role of ultrasound (Drs Valeria Lanzerone and Uche Menakaya). The night finished with Skyfire and a lovely lakeside view of the fireworks from the National Museum of Australia.

Let’s Talk About Sex and Endometriosis

On the 31 May 2016 the Canberra Endometriosis Network and Women’s Centre for Health Matters ran a great information night on this often overlooked topic with guest speakers Kate Fisher (Sex therapist) and Jane Keaney (Sex Therapist and Social Worker).

Leading Physician and Advanced Laparoscopic Surgeon

Dr. Omar Adham, Obstetrician and Gynaecologist, is an advanced laparoscopic surgeon and endometriosis specialist. He is best known to his patients for his friendly, down-to-earth, practical approach. He combines compassion and respect with the highest quality holistic care.

Centre Location

Centenary Hospital for Women and Children, Building 11, Level 2, Cnr Gilmore Crescent and Hospital Road, Canberra Hospital.

Service Location Information

All ACT Health facilities are completely smoke free. All patients, visitors and staff are required to remain smoke free when visiting any ACT Health facility. Security officers will enforce the smoke free environment. Support is available to help smokers to stay smoke free during their visit to ACT Health facilities. For more information on quitting speak to your GP or Pharmacist.

Attending the Canberra Endometriosis Centre

The Centre is staffed by Gynaecologists trained in laparoscopic excision of endometriosis and a full time Endometriosis Nurse Coordinator and researcher, supported by other health professional groups such as pelvic physiotherapy, psychology, pain management unit, chronic pain specialists.

Not all women who attend the Centre will necessarily have a diagnosis of endometriosis however, painful periods and menstrual disturbance, pelvic pain and their management are also a key feature of the work of the Centre. Therefore the pathway through the services is a stepped approach and includes attending the group education session and a one on one visit with the Endometriosis Nurse Coordinator (not on the same day unless travelling from interstate). Following these, an appointment will be planned with the clinic doctors if required.

Canberra Endometriosis Centre Services

1. Group Endometriosis and Pelvic Pain Information Sessions

Group Endometriosis and Pelvic Pain Information Sessions are held periodically from 1pm - 3pm on a Wednesday at the Canberra Hospital.

All women wishing to access the Canberra Endometriosis Centre services are advised to attend the 2 hour Information Session first. A referral is not required to attend the information session (but is required to see the endometriosis specialist).

Teenagers and women who are seeing health professionals not linked with the Canberra Endometriosis Centre are still welcome to attend this comprehensive information session about diagnosis and long term management of period pain, pelvic pain and endometriosis.

Group Information Session Dates for 2017

8/2/2017; 15/3/17; 26/4/17; 5/7/17; 16/8/17; 4/10/17; 15/11/17

The session is free but please book on (02) 6174 7625.

“The info session was great - very comprehensive and informative” - Susan.

2. One on one visit with Endometriosis Nurse Coordinator

The endometriosis Nurse Coordinator will conduct a one on one visit with you to take a detailed health history to determine the pain and symptoms you are experiencing, to explain the possible causes of the symptoms and create a tailored management plan with you.

“Thank you for seeing me yesterday. It was immensely helpful and I am feeling more at ease with my condition now that I have a few more answers and ideas for treatment” - Dannielle

3. Seeing a doctor

To see doctors through the Canberra Endometriosis Centre, a referral is required from your GP before an appointment can be made for the clinic. The referral can be faxed by your GP to the GOPD (Gynaecology Outpatient Dept) on 6244 3834 and marked “Attention Dr Omar Adham/Canberra Endometriosis Centre”.

Your referral will be triaged and you will be contacted by phone and an appointment offered to see the Endometriosis Nurse in the first instance. See the Canberra Endometriosis Centre Services information sheet below to  read more about the pathway through the service.

You will be sent a letter confirming the appointment. If you have consented to SMS messages you will receive an SMS reminder.

Contact us

For Group Information Sessions: (02) 6174 7625
For Appointments: (02) 6174 7625
Endometriosis Co-ordinator (non-urgent enquiries): (02) 6174 7620
Fax for referrals: (02) 6244 3834

Email: endometriosis@act.gov.au

More Information

Links

Painful periods and diagnosing endometriosis:

Endometriosis and other causes of pelvic pain:

Comprehensive information:

Information and fundraising:

Endometriosis activitists, information and support:

General youth health:

Sexual health

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